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Emily VanHoutan, 11, helps secure a cape around her little sister, Colette, 2, while playing June 20, 2017, in Downers Grove. Neither Emily nor Colette has CLN2 Batten disease.
Alyssa Pointer / Chicago Tribune
Emily VanHoutan, 11, helps secure a cape around her little sister, Colette, 2, while playing June 20, 2017, in Downers Grove. Neither Emily nor Colette has CLN2 Batten disease.

Battling Batten disease

Chicago Tribune
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A Downers Grove family’s tireless quest to end CLN2 Batten disease prompted FDA approval of first-known treatment. Sadly, the drug came too late for their two children diagnosed with the disease.

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