Helping hands
Your article about the young adults with spina bifida (“Trying life on for size,” Sept. 2) gave an excellent view of the accomplishments of many young adults with this birth defect. Several of those featured in the article who are moving into higher education, careers and apartments benefited from their attendance at Camp Ability, operated by the Spina Bifida Association of Illinois.
Since 1989, this residential summer camp has offered youngsters from 7 years to young adulthood an opportunity to develop their independent-living skills while enjoying a camping experience. Many of them who went on to college studies, careers and living in their own apartments point to Camp Ability as the source of the self-confidence they need to succeed. For additional information, please visit our Web site at sbail.org or call 800-969-4722.
SCOTT J. MUNKVOLD / president, Spina Bifida Association of Illinois
THANK YOU FOR your story on the courageousness of those with spina bifida and those helping them. My brother, Timm, was born with severe spina bifida in 1939. He was smart, had a tremendous sense of humor and an indomitable spirit. With that spirit and his parents’ loving care, he led a wonderful life in New Holstein, Wis., where the community not only supported Timm but gained strength from his personality and life during his 56 years. Without fanfare or special treatment, he was a regular member of the town and all its activities. In his quiet, courageous way, he set a high standard for living and loving and caring for all of us.
JON LEVERENZ / Glenview
I WOULD ARGUE that spina bifida is not “totally debilitating” as described in your article. I was one of the babies they didn’t let die almost 40 years ago. I do have weak leg muscles and walk with a limp, but I do not use a wheelchair and I don’t have a shunt or any cognitive deficits. I do have a master’s degree and a job, and I don’t feel debilitated at all.
AIMEE LOOK / Chicago
———–
Write us
Send mail to The Editor, Chicago Tribune Magazine, 435 N. Michigan Ave., Chicago, IL 60611, or to tribmag@tribune.com.




